WMMS was a big part of my life, over 21 years. Now the rest of my life will be about MS–Multiple Sclerosis.
I really didn’t know very much about this disease until one of my daughters, Stephanie, started complaining about a numbness in her arms and legs. The doctor said it could be MS and sure enough, after a number of tests, which included a spinal tap, his diagnosis was correct. Just to be sure, we asked for more opinions and all agreed–it’s MS.
The good news is we caught it very early. MS is treatable and so far Stephanie is reacting fairly well to the medicine, Avonex. That’s another story all by itself. This drug costs $1,800/month and I am very fortunate to have wonderful health coverage, but what happens when she’s on her own? And what about others with poor coverage or none at all? It’s sad, it’s scary, and it’s very real.
I also need to tell you Stephanie has a twin sister, Rachael, and the odds are she has a 50% chance of developing MS in her lifetime. Needless to say, all this, which hit us like a ton of bricks in the past 2 months, has left our heads spinning.
But we’re also remaining very supportive of Stephanie and very optimistic for what the future holds.
There is a lot of research being done and much of it right here in Cleveland. We just need to keep moving and the best way to start is to get involved in the MSOhio Walk, which takes place in downtown Cleveland Saturday, April 26th.
You can find out more at www.msohiowalk.org or better yet, join my team–MS for “Motivate Stephanie”
Ed “Flash” Ferenc